Topic
Living Well with Monogenic Diabetes
Stress, diabetes distress, mental well-being, family support, and long-term adaptation.
Relief, Anger and Wasted Years
A correct diagnosis arriving after years of the wrong one produces a complicated reaction. Relief and anger together are the normal response.
A Diagnosis Doctors Do Not Know
Having a condition your doctor has never seen is its own burden. Here is how to advocate for yourself without becoming the difficult patient.
Telling Your Family They May Have It
Carrying news that affects your relatives is a particular burden. Here is how to pass it on usefully, and how to handle those who refuse it.
Decisions About Having Children
A 50% chance of passing on your variant is real information, and how much it should weigh depends heavily on which subtype you happen to have.
Registries, Research and Finding Others
Monogenic diabetes registries actively want cases from under-studied populations like India, and some of them will offer testing at no cost.