Diabaté Aider

The Main Genetic Causes

Reviewed by CDE Mehandi Sharma · Updated

There are many known causes of neonatal diabetes, but a few account for most cases. Knowing which group your baby falls into tells you a great deal.

The commonest causes, from an international series of 1,020 babies
CauseShareWhat it usually means
KCNJ11 or ABCC8About 38%Permanent, but usually treatable with a tablet instead of insulin
6q24 abnormalityAbout 20%Transient — settles in infancy, often returns around puberty
INS (the insulin gene)About 11%Permanent; insulin remains the treatment
EIF2AK3About 7%Permanent, part of a wider syndrome affecting bones and liver

The first two rows carry most of the practical news. A potassium channel result is the one that most often changes treatment. A 6q24 result predicts that the diabetes will settle in infancy — while also predicting that it is likely to come back later.

The Indian picture has its own pattern. Where parents are related by blood, which is common in parts of India, recessive causes such as EIF2AK3 appear more often than they do elsewhere. In one South Indian centre, 75% of the families had a consanguineous marriage, and no potassium channel cases were found at all — while other Indian series report potassium channel changes in around a third of cases.

That variation is precisely why the test is done on your baby rather than assumed from statistics.

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